Wednesday, April 15, 2009

Landon's visit to the "liver doc"





(Pictures from Landon's ultrasound. I did not have the presence of mind to take pictures during the doctor's appointment; more on that later.)

Wow, can I just say that God is good. Looking back over the last almost-four years, I can honestly say I didn't see things working out this well. I don't know exactly what I expected, but not for our time inside TCH as patients to come down to 30 minutes a year! For those of you who don't know/remember, from the time Landon was born until almost 1.5 years, we spent a LOT of time in the hospital with him.
So here is the short of it: Landon has NEVER had normal liver function tests (LFTs) except for his bilirubin. Well, due to a lot of prayer and skillful doctors, his labs from last week are NORMAL!!!! I cannot tell you how good this does a mother's heart. Only one number (GGT for those of you who know the specifics) was out of range by 5 points, but compared to what it has been, it is amazing!
Thank you God for a great report. The doc's words were the same as last year: "See you in a year!" Biliary atresia is still a nasty disease; Landon is definitely the exception and not the rule. So we are keeping the other families we know in prayer that aren't having such an easy time.
Speaking of, since most kiddos who have BA eventually have a liver transplant, Ben and I are very much into organ donation awareness. April is Organ Donation Awareness Month and so we went to an event today to get TMC employees to sign up to be donors. Ben actually signed up the president of TMC! Anyway, Landon got to wear a shirt as a "future potential recipient." We got to hear stories from donor families, and let me tell you that is emotional. They are such selfless people who use their pain to bring joy to others.
Here is Landon playing with a friend who already had a liver transplant as a baby:




Side note: The actual doctor's visit last week is a blur to me because Allison was an absolute TERROR. And I am not exaggerating. Horrible. Embarrassing. Screaming. Throwing toys across the room. Don't let the cuteness fool you, that child has a mean streak in her! But we love her to pieces just the same. But hence, the reason for no photos of Landon with his awesome doctor!
Oh my goodness, so it has been soooo long since I blogged, I don't even know if I can catch up!
But I'll try. On March 20th, we closed on our new house! Thanks to some great friends and some super-hard-working movers, we got the bulk of the stuff in the next day. Ben's brother and one of his friends came over the next day and finished it up. Man, we have a lot of JUNK! Hopefully, that amount has decreased by my pruning!
Anyway, the next weekend we went home for a flying visit. I had breakfast with one of my BFFs and sister (don't mess with the girls at the Golden Corral Breakfast Buffet!), plus we saw my parents, my grandparents, and Ben's family, and our friends Jason and Mandy! Yes, it was insanely quick but fun.
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So I just decided I'm going to do several different entries to catch up; too many things that are totally different from one another and just can't all be lumped into one.